Diagnosed with MS 12 years ago, Fernando was forced to take early retirement due the daily struggles he faces with bladder control.... Find out more
It was January 2007 and my diagnosis of Primary Progressive Multiple Sclerosis (PPMS) was official. It was rubber-stamped with a letter I received from my consultant. I was actually relieved, as there were so many things going wrong with my body and there was no explanation for it. So, to be finally given a name […]
Johan van Etten, Community Member
At the end of 2014, a crazy idea popped into my head: I should run a marathon. And not just any marathon, but the toughest marathon in the Netherlands: the Iron Viking Run. Forty-two kilometres through the mud, with added obstacles! My training programme was in full swing: I was running 90 kilometres every week, […]
Nick Davies, Community Member
MS forces you to adapt to the way you carry out everyday tasks. Things that able-bodied people take for granted. One of these is cooking. It’s all too easy to buy ready-made meals because the prospect of cooking can be so daunting. As you may know, life with MS is a struggle 24/7. But there […]
At the time of diagnosis a chronic illness is a tsunami and a long-term challenge thereafter. Having a love of the arts or sport can make acceptance easier. For me, putting my woes into words has always helped me. As a teenager, I always loved writing: writing enabled me to distance myself from my feelings, […]
When you are going through a nightmarish MS diagnostic process, work becomes a safe haven, a refuge. It provides badly-needed routine and a sense of continued identity in an uncertain world of lumbar punctures, blood tests and inconclusive appointments with medical consultants. As your world collapses, one thing is certain; you can still do your […]
There are lots of things I don’t like about MS. Here are just a few of them: • I walk with a wobble and it’s getting worse • When I drink wine or strong black coffee, I will need a wee within half an hour • Running for the bus? Gave that up years ago […]
Since a few weeks ago, I‘ve been writing for a Dutch blog called Mantelzorgelijk.nl. They asked me if I’d like to share my experiences (which I am writing on my personal blog) and the first thing that came to my mind; am I a caregiver? For me the term caregiver is just a name – […]
Multiple Sclerosis pops up in the plot of a novel I am reading or a drama I am watching every now and then. Usually, a normally law-abiding citizen is driven to crime to pay for their wife’s exorbitantly expensive drug. Other times, a new relationship comes into difficulties because a previous partner had MS. I’m […]
Listen to what they’ve got to say about the mighty task.
Our Judging Panel have shortlisted the three final ideas to go to public vote. Watch out for their announcement!
The World vs.MS judges and collaborators share their experiences of being a part of the initiative.
Our Steering Committee share their experiences of being part of The World vs.MS
The brainy Hackers at HackAMSterdam tell us about their experience of the weekend.
Paula discusses her experiences with MS, motherhood, work and much more!
Fernando discusses his experiences with MS.
The World vs.MS team shares the highlights from HackAMSterdam!
Floris Tenholter is a 36-year-old IT worker living in the Netherlands with his wife who has MS. He is also the founder of Platform MS, a site where people in the MS community can share their personal stories. This is his story of how he started his blogging site. A few weeks after I started […]
The key to health and happiness is to understand and accept who you are. MS has taught me so much about my body and mind but it didn’t happen in an instant. It was a case of trial and error over the first year or so living with MS to really understand what was working […]
Since becoming involved in the MS community, following my own diagnosis 8 years ago, I’ve had the chance to experience lots of things. HackAMSterdam was definitely up there as the most novel and unique event I’ve been asked to attend! Held over 19th-20th November 2016, the event was designed to create solutions to the three […]
I’m Patrick Burke and have suffered from multiple sclerosis (MS) for far too many years. I am convinced it all started in 1972 when I was 18. I ignored a serious relapse in 1979 when my bladder emptied itself twice but the problem seemed to go away. I was diagnosed with MS in 1994 I […]
Barbara A. Stensland
What do you get when you bring together: 90 participants 36 hours 9 hacker teams 8 expert companies 5 countries? One winning, life-changing idea. Earlier this year, I was thrilled to be asked to take part in a new initiative – The World vs.MS. The idea was refreshingly simple; ask the MS community to invite […]
The ideas submission phase has been wonderful. Much more wonderful than we could have possibly imagined when we first presented the three challenges to European innovators, creatives, and the everyday people wanting to make a difference. As soon as the three briefs were revealed on our website, we waited anxiously for the first idea to […]
When you think of family planning you think of the usual. Can we afford it? Is now the right time? Do we name them after an exotic fruit or not? But for Celia, diagnosed with relapsing-remitting MS three years ago, there was even more to consider. We sat down with her to talk about her […]
The World vs.MS
Now the ideas phase of The World vs.MS has launched, there’s just one vital thing we need. You. Whether you’re a teacher, designer, stay-at-home parent, student or entrepreneur, we want you to take on our challenge briefs and tell us your ideas to solve them. The World vs.MS is all about brains helping brains, and […]
Every year in May I commemorate my “MS’versary” – the day that I was diagnosed; a day that changed my life in ways I could never have imagined. FROM NEGATIVE TO POSITIVE Receiving an MS diagnosis is hard. I was scared, worried about the future. However, I didn’t want to feel like that forever. More […]
The World vs.MS
Study a map of central Amsterdam closely enough and, from the right angle, you’ll notice something. The city’s outline and vast canal network with its many intersections and crossing points begins to resemble the folds and grooves of the human brain. The canals are the lifeblood of the city, connecting people and places and without […]
Standard Coffee Most people are able to buy a standard cup of coffee in a local coffee shop or café for between £1-2. Highstreet Coffee You can also buy a similar coffee from any high street café, restaurant or coffee shop. You can usually take your pick from a variety of styles – cappuccino, latte, […]
Nadine Van Dongen, Steering Committee
Nadine Van Dongen recounts her experience working with MS patients as founder of the patient research company PIPHealth. For many, opening up and talking to strangers doesn’t come easy, but when it’s something as personal as your own health it evokes many emotions. Through my role at Patient Intelligence Panel (www.piphealth.com), I encounter many different […]
The World vs.MS
It’s 22nd June 2016. Ireland’s football team face arguably their toughest ever challenge in opponents Italy, but it’s not just Ireland fans who are feeling the pressure… The same day, our Judging Panel arrive in Dublin, each member aware of the task at hand. Whilst the boys in green are going head-to-head with the Italians […]
The World vs.MS
“Make the most of the good times” Charlotte, a medical journalist living in Paris, explains how her life has changed since her MS diagnosis 19 years ago. From making time for family and friends to telling first dates about her condition, she shares her experiences of balancing a busy social life with her multiple sclerosis. […]
Having a thriving social life with MS requires a great deal of organisation, at least that’s the case for me, given that I suffer from exhaustion and pain. Over years of lost experiences and all too frequent cancellations, I’ve developed a few tricks that allow me to see my friends without paying for it too […]
So often I’m told; “You look really well! How are you managing MS so well on top of everything else going on in your life!?” All I think to myself is… where do I start! Nutrition? Sleep? Exercise? Mental approach? Lifestyle choices? When I was diagnosed with MS I made a conscious decision to evaluate […]
Every few months, I get an “angry at my MS” day. They happen much less than they used to but they are the days when the philosophical clichés I see on social media just don’t help. Days when I just want to pulverise the lemons life has given me. I have found that it’s better […]
When you are diagnosed with MS… you slowly begin to realise that this is not for the short term and something that we are going to have to deal with and accept for the foreseeable future. However, I was determined for this not to be the case… I wanted to show them (medical professionals) and […]
Kaz shares his experiences of being a father living with MS.
Kaz shares his greatest achievements
Claire remembers the day of her MS diagnosis.
Paula describes how the invisible symptoms of multiple sclerosis impact her day-to-day.
Paula shares her top tips on diet, exercise and sleep.
Paula discusses what she has learnt about herself since her multiple sclerosis diagnosis.
“MS is my opportunity to be legendary” Paula is a visual merchandiser from London who has been living with multiple sclerosis for three years. From temporarily losing her eye sight to building art installations, Paula gives us an intimate insight into her life with MS. Paula: My story Paula talks diagnosis and how her blog, […]
“I’ve focussed on the positive and reinvented myself” A digital marketing expert, Kaz tells his story of life with MS since his diagnosis 9 years ago. From increasing disability to gaining the BBC as a client, Kaz talks about all aspects of life with MS and how a positive attitude goes a long way. Kaz: […]
“You’re not seriously thinking of squeezing me into that?” I asked my daughter in panic during a recent wheelchair trip around the shops, right before my kneecaps met the back wall of one of the tiniest lifts I’ve ever seen. I’m sure the shop owners ticked all the boxes on their planning application regarding disabled […]
“It’s about the small victories” A writer, a traveller and a graphic designer, Claire shares her experiences of living with multiple sclerosis since her diagnosis eight years ago. From walking sticks and wheelchairs to giving her limbs characters, Claire describes how she manages life with MS whilst raising her two children. Claire: My story Claire […]
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