The World vs.MS
The future can seem uncertain, especially when you live with MS. Being informed about the disease can help you to take control, and Demand More from your life with MS.
The damage caused by MS can vary in severity and can occur at any location throughout your central nervous system. Because of this, the symptoms experienced and how severe they will become are unique to each individual.1,2
Although it is important to be aware of what could happen, try not to focus on the worst case scenario. For example, many people with MS fear the possibility of being in a wheelchair; however, the majority of people across the MS spectrum will never need to use a wheelchair on a regular basis.3
There are instances where symptoms can become worse for reasons other than a relapse. For example, some people note that their symptoms get worse in the heat, when they are stressed or if they get an infection. Some individuals may experience day to day fluctuations in their symptoms.4
Progressive MS is a type of MS that is characterised by a steady and gradual increase in the number and severity of symptoms.1 Some people will first present with the progressive type of MS. In these instances, it is called â€˜primary progressive MSâ€™.5
Some people with RRMS will go on to develop progressive MS. In these instances, it is called â€˜secondary progressive MSâ€™. It is unclear what causes the transition to secondary progressive MS, but recent findings suggest that effective treatment with disease modifying treatments (DMTs) reduce the chance of this occurring.6,7
By slowing down the build-up of irreversible damage, treatment with a DMT can improve:10,11
Current recommendations to doctors are that they should offer treatment as close to diagnosis as possible.12 It is important to remember that all DMTs come with risks and potential side effects so you should discuss your treatment options with your doctor or MS nurse.1
MS is considered as a chronic condition, but not a terminal one. Although people don’t die directly from MS, if they are severely affected by the disease the risk of dying from a complication related to MS is larger.13
What do you find yourself thinking about when you consider your future with MS?
I worry about how the disease could progress.
I think about the things I want to do in life.
I just concentrate on each day as it comes.
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Please select an answer to cast your vote
Being informed about MS and understanding the facts can help you to feel more confident about your future. Consider your options, set goals for yourself and continue to Demand More from life with MS.
References:1. Multiple sclerosis â€“ NHS UK. Available from: https://www.nhs.uk/conditions/multiple-sclerosis/#outlook. Last accessed: July 2018. 2. MS symptoms â€“ National MS society. Available from: https://www.nationalmssociety.org/Symptoms-Diagnosis/MS-Symptoms. Last accessed: July 2018. 3. MS: the facts â€“ MS trust. Available from: https://www.mstrust.org.uk/about-ms/what-ms/ms-facts. Last accessed: July 2018. 4.Managing relapses â€“ MS trust. Available from: https://www.mstrust.org.uk/about-ms/ms-symptoms/managing-relapses. Last accessed: July 2018. 5.Primary progressive MS – MS society UK. Available from: https://www.mssociety.org.uk/about-ms/types-of-ms/primary-progressive-ms. Last accessed: July 2018. 6. Brown J. Oral presentation at the European Committee for Treatment and Research in Multiple Sclerosis congress; 2017; 26th October: Paris. Abstract:202481. 7. Tedeholm H et al. Mult Scler 2013; 19(6):765-764. 8. When the transition to SPMS occurs â€“ National MS society. Available from: https://www.nationalmssociety.org/What-is-MS/Types-of-MS/Secondary-progressive-MS/When-the-transition-to-SPMS-occurs. Last accessed: July 2018. 9. Disease modifying drugs â€“ MS trust. Available at: https://www.mstrust.org.uk/about-ms/ms-treatments/disease-modifying-drugs-dmds. Last accessed: July 2018. 10. Giovannoni G et al. Neurology 2016; 87(19):1985-1992. 11. Belachew S et al. Eur J Neurol 2011; 18(2):240-245. 12. Early treatment â€“ MS society UK. Available from: https://www.mssociety.org.uk/about-ms/treatments-and-therapies/disease-modifying-therapies/early-treatment. Accessed July 2018. Last accessed: July 2018. 13. First questions â€“ MS society UK. Available from: https://www.mssociety.org.uk/about-ms/diagnosis/first-questions. Last accessed: July 2018.
Date of approval: October 2018 GZEMEA.MS.18.07.0181a