Diagnosed with MS 12 years ago, Fernando was forced to take early retirement due the daily struggles he faces with bladder control.... Find out more
ideas submitted that could potentially solve Paula’s challenge
Paula suffers from extreme cold sensitivity in her feet and no matter what she does, she can’t get them to stay warm. With this, her whole body constantly feels cold and it’s beginning to affect every aspect of her life.
Paula struggles with temperature changes that particularly affect her feet
“My feet are usually cold, or rather freezing. It’s a very uncomfortable feeling – a strange and numb sensitivity. And no matter how many socks, blankets, different sources of heat or hot water I apply, they will still be cold.”
Whilst cold feet can be a problem for many, solutions which work for other people do little to help Paula. From mountaineer socks and boots with fur lining to hot water and electric blankets, Paula has tried it all – but nothing has worked. Exercising has become a struggle as her feet remain cold and numb whenever she goes walking or swimming – her challenge is really beginning to affect every aspect of her life.
“It’s frustrating when you don’t seem to be making any progress”.
With constantly cold feet – her whole body feels cold and she is always fighting to stay warm. At home this means having the heating on full blast and sleeping with several blankets – but still she shivers whilst her husband sweats and over-heats.
At work, she wears an overcoat and multiple layers of socks – things that “kind of separate me from other people”. Her feet often feel hard and numb, meaning any kind of movement can be problematic, and because of the nature of her challenge, it can be underestimated by people who think everyone experiences this problem – “everybody is cold at one point or another”.
Many people living with MS find themselves affected by hot and cold, with the change in temperature affecting how messages pass along nerves in the brain that have been damaged by MS, making symptoms worse.2
Like Paula many others also find the cold a problem, whilst around 58% of people living with MS actually have difficulty tolerating the heat.1,2 The variety of challenges we received relating to temperature highlights just how differently it can affect different people:
“Not being able to kick my duvet off in bed if my feet are too hot, so lying there trapped in a sauna or pulling the whole duvet off and waking up shivering an hour later. I get weaker with temperature increase but by the time I wake up hot it is already too late to move my legs!”
“I get too hot in the gym which brings on past symptoms such as pins and needles in my legs.”
The World vs.MS is about people. It’s about anyone living with multiple sclerosis or anyone inspired to join the fight against it. Here are their stories and the latest updates from us.
It was January 2007 and my diagnosis of Primary Progressive Multiple Sclerosis (PPMS) was official. It was rubber-stamped with a letter I received from my consultant. I was actually relieved, as there were so many things going wrong with my body and there was no explanation for it. So, to be finally given a name […]
Johan van Etten, Community Member
At the end of 2014, a crazy idea popped into my head: I should run a marathon. And not just any marathon, but the toughest marathon in the Netherlands: the Iron Viking Run. Forty-two kilometres through the mud, with added obstacles! My training programme was in full swing: I was running 90 kilometres every week, […]
Nick Davies, Community Member
MS forces you to adapt to the way you carry out everyday tasks. Things that able-bodied people take for granted. One of these is cooking. It’s all too easy to buy ready-made meals because the prospect of cooking can be so daunting. As you may know, life with MS is a struggle 24/7. But there […]
Diagnosed with MS 12 years ago, Fernando was forced to take early retirement due the daily struggles he faces with bladder control.
References: 1. Flensner G. et al. Sensitivity to heat in MS patients: a factor strongly influencing symptomology – an explorative survey. BMC Neurology 2011; 11:27. 2. MS Society. Hot and cold – the effects of temperature on MS factsheet. Available at: https://www.mssociety.org.uk/ms-resources/hot-and-cold-effects-of-temperature-on-ms-factsheet. Last accessed: August 2016 3. Prevalence and incidence of multiple sclerosis. MS Trust. Available at: https://www.mstrust.org.uk/a-z/prevalence-and-incidence-multiple-sclerosis. Last accessed: August 2016. 4. Introduction to MS. MS Trust. Available at: https://www.mstrust.org.uk/understanding-ms/what-ms/introduction-ms. Last accessed: August 2016.
You are about to leave www.TheWorldvsMS.com. Sanofi Genzyme is not responsible for the content of this external website.
You are leaving to visit another one of our group websites. This website may be governed by different terms and conditions.
A big thank you for casting your vote and for playing a part in potentially changing the lives of thousands of people living with MS.
The winner will be announced
so keep an eye on our social channels for the big reveal and sign-up to our newsletter to receive the latest updates and behind-the-scenes content from
The World vs.MS.