Diagnosed with MS 12 years ago, Fernando was forced to take early retirement due the daily struggles he faces with bladder control.... Find out more
ideas submitted that could potentially solve Giacomo’s challenge
Giacomo and his wife Silien love to travel, but her multiple sclerosis (MS) has a direct impact on her ability to get around, imposing limits on the life they live together.
Giacomo’s wife Silien struggles with mobility.
She’s unsure on her feet, often relying on the closest wall to find her balance, and regularly needs periods of rest. Whilst she won’t let this stop her from doing things, it does impose limits on the life they live together.
“We were both keen walkers. We would travel to different places and simply enjoy walking around. This has faded away over the years, for obvious reasons. From time to time, she regrets that.”
The uncertainty that comes with Silien’s limited mobility can mean many everyday situations are a source of anxiety for both herself and Giacomo, and this has had a real impact on her self-confidence.
“At the airport or in busy stations she’s a bit worried about being bumped into because she recognises the fact that she is more fragile, and in a sense, this also projects on me. When she is travelling on her own, I have a little anxiety.”
Along with the physical limitations come the psychological ones. Whilst accepting life with MS is one thing, accepting help can be another. And this acceptance can be made harder by the stigma often attached to walking aids. Although they can help people overcome their mobility problems, using them can create further anxiety around how they are perceived and treated by others.
Whilst Silien needs help in steadying herself and in walking long distances, she doesn’t want her MS to define her, or for other people to see her as an ‘MS sufferer’.
Approximately 70 – 80% of people living with MS experience difficulty walking.1
These difficulties are related to a number of factors – from muscle weakness and numbness caused by slowed or altered nerve conduction, to balance issues and unsteadiness.2 And they are difficulties that many members of the MS community are living with every day:
“My abnormal way of walking is a constant source of morbid fascination to others. This is increasingly leading me to shut myself away at home.”
“I can’t walk on my own, I’ve always got to be holding on to something and even then I’ve fallen several times as I’ve got balance problems.”
The World vs.MS is about people. It’s about anyone living with multiple sclerosis or anyone inspired to join the fight against it. Here are their stories and the latest updates from us.
It was January 2007 and my diagnosis of Primary Progressive Multiple Sclerosis (PPMS) was official. It was rubber-stamped with a letter I received from my consultant. I was actually relieved, as there were so many things going wrong with my body and there was no explanation for it. So, to be finally given a name […]
Johan van Etten, Community Member
At the end of 2014, a crazy idea popped into my head: I should run a marathon. And not just any marathon, but the toughest marathon in the Netherlands: the Iron Viking Run. Forty-two kilometres through the mud, with added obstacles! My training programme was in full swing: I was running 90 kilometres every week, […]
Nick Davies, Community Member
MS forces you to adapt to the way you carry out everyday tasks. Things that able-bodied people take for granted. One of these is cooking. It’s all too easy to buy ready-made meals because the prospect of cooking can be so daunting. As you may know, life with MS is a struggle 24/7. But there […]
Diagnosed with MS 12 years ago, Fernando was forced to take early retirement due the daily struggles he faces with bladder control.
References: 1. Culpepper WJ et al. VHA Multiple Sclerosis Surveillance Registry and its similarities to other contemporary multiple sclerosis cohorts. J Rehabil Res Dev 2015; 52(3): 263-272. 2. Walking difficulties. Multiple Sclerosis Trust. Available at: https://www.mstrust.org.uk/a-z/walking-difficulties. Last accessed: August 2016. 3. Prevalence and incidence of multiple sclerosis. MS Trust. Available at: https://www.mstrust.org.uk/a-z/prevalence-and-incidence-multiple-sclerosis. Last accessed: July 2016. 4. Introduction to MS. MS Trust. Available at: https://www.mstrust.org.uk/understanding-ms/what-ms/introduction-ms. Last accessed: August 2016.
You are about to leave www.TheWorldvsMS.com. Sanofi Genzyme is not responsible for the content of this external website.
You are leaving to visit another one of our group websites. This website may be governed by different terms and conditions.
A big thank you for casting your vote and for playing a part in potentially changing the lives of thousands of people living with MS.
The winner will be announced
so keep an eye on our social channels for the big reveal and sign-up to our newsletter to receive the latest updates and behind-the-scenes content from
The World vs.MS.