Blog de The World vs.MS

The World vs.MS se centra en la comunidad de EM. El objetivo es que las personas con esclerosis múltiple o cualquiera que sienta la motivación se unan en la lucha contra la enfermedad.

Aquí están sus testimonios y las últimas actualizaciones.

Prioridades centradas en el paciente: la perspectiva de Jacobo

Prioridades centradas en el paciente: la perspectiva de Jacobo

The World vs.MS

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Blogs

07-02-2019

5 minutos, 40 segundos

¿Cómo han cambiado tus prioridades desde que te diagnosticaron EM? Desde que me la diagnosticaron, llevo más de diez años conviviendo con la EM, así que mis objetivos han cambiado muchísimo desde entonces. Cuando me diagnosticaron EM, casi no tenía...

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Patient Focused Priorities: Joao’s perspective

Patient Focused Priorities: Joao’s perspective

The World vs.MS

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Blogs

31-01-2019

6 minutos, 57 segundos

  What feelings did you have when you were first diagnosed with MS? When the diagnosis arrives it takes us by surprise, not only because we don’t know what’s wrong, but because we learn that there is still no cure...

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Patient Focused Priorities: Barbara’s perspective

Patient Focused Priorities: Barbara’s perspective

The World vs.MS

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Blogs

31-01-2019

6 minutos, 49 segundos

  What feelings did you have when you were first diagnosed with MS? MS has never been known for its great timing. In 2011, I was in the middle of changing career direction, my son was about to start high...

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How digital solutions can help people living with MS

How digital solutions can help people living with MS

The World vs.MS

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Blogs

14-01-2019

8 minutos, 5 segundos

New digital technologies are taking hold in our lives apace. Everywhere you look, you see new ‘digital tools’ and other gadgets making the move from analogue to digital. Data, bills and all the other documents that were once on paper...

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MS, self-reflection and compromise

MS, self-reflection and compromise

The World vs.MS

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Blogs

14-01-2019

8 minutos, 13 segundos

Soon after my diagnosis of MS, I realised that life was now all about give and take. I was giving up everything, MS was taking. Not only that, I was navigating a whole new world without a map – there...

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Telling people at work about your MS

Telling people at work about your MS

The World vs.MS

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Blogs

14-01-2019

9 minutos, 58 segundos

So, you’ve been diagnosed with Multiple Sclerosis and, along with all of the emotional turmoil that comes with being diagnosed with a life-long condition, you’re also worried about work. The majority of MS diagnoses happen when people are in their...

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I make my own decisions

I make my own decisions

The World vs.MS

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Blogs

14-01-2019

6 minutos, 51 segundos

“I’ll just do that for you!”, or “you can’t do that, you shouldn’t be doing that!”. It’s something that happens to all of us who live with MS from time to time, other people relishing in making our decisions for...

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How Fabienne helped Charlotte Demand More from life with MS

How Fabienne helped Charlotte Demand More from life with MS

The World vs.MS

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Blogs

24-08-2018

6 minutos, 9 segundos

From my perspective On the morning of 5 December 2010, I fell to the floor when getting out of bed. The right side of my body no longer responded; I was paralysed on one side. I nevertheless had enough strength (the paralysis would worsen over the upcoming days) to drag myself into the living room...

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How Telma’s husband helped her Demand More from life with MS

How Telma’s husband helped her Demand More from life with MS

The World vs.MS

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Blogs

08-08-2018

4 minutos, 25 segundos

Not long ago, I was chatting to a friend and I said to her: “Sometimes, people think that a miracle happened to me to be as I am, but that’s not what happened.” Dilma knowingly replied, “People see your smile, but they didn’t see your tears and what they want is to smile when they...

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