The World vs.MS Blog

L’initiative The World vs.MS s’intéresse à la communauté. Elle concerne toutes les personnes qui vivent avec la sclérose en plaques ou qui aspirent à participer au combat mené contre cette maladie.

Voici les récits que nous avons recueillis et les dernières actualités.

Patient Focused Priorities: Jacobo’s perspective

Patient Focused Priorities: Jacobo’s perspective

The World vs.MS

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Blogs

31-01-2019

5 minutes, 46 secondes

  How have your priorities changed since being diagnosed with MS? Considering I have been living with Multiple Sclerosis for over ten years since I was diagnosed, my objectives have changed hugely. When I was first diagnosed with MS, I...

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Patient Focused Priorities: Joao’s perspective

Patient Focused Priorities: Joao’s perspective

The World vs.MS

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Blogs

31-01-2019

6 minutes, 57 secondes

  What feelings did you have when you were first diagnosed with MS? When the diagnosis arrives it takes us by surprise, not only because we don’t know what’s wrong, but because we learn that there is still no cure...

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Patient Focused Priorities: Barbara’s perspective

Patient Focused Priorities: Barbara’s perspective

The World vs.MS

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Blogs

31-01-2019

6 minutes, 49 secondes

  What feelings did you have when you were first diagnosed with MS? MS has never been known for its great timing. In 2011, I was in the middle of changing career direction, my son was about to start high...

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How digital solutions can help people living with MS

How digital solutions can help people living with MS

The World vs.MS

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Blogs

14-01-2019

8 minutes, 5 secondes

New digital technologies are taking hold in our lives apace. Everywhere you look, you see new ‘digital tools’ and other gadgets making the move from analogue to digital. Data, bills and all the other documents that were once on paper...

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MS, self-reflection and compromise

MS, self-reflection and compromise

The World vs.MS

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Blogs

14-01-2019

8 minutes, 13 secondes

Soon after my diagnosis of MS, I realised that life was now all about give and take. I was giving up everything, MS was taking. Not only that, I was navigating a whole new world without a map – there...

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Telling people at work about your MS

Telling people at work about your MS

The World vs.MS

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Blogs

14-01-2019

9 minutes, 58 secondes

So, you’ve been diagnosed with Multiple Sclerosis and, along with all of the emotional turmoil that comes with being diagnosed with a life-long condition, you’re also worried about work. The majority of MS diagnoses happen when people are in their...

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I make my own decisions

I make my own decisions

The World vs.MS

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Blogs

14-01-2019

6 minutes, 51 secondes

“I’ll just do that for you!”, or “you can’t do that, you shouldn’t be doing that!”. It’s something that happens to all of us who live with MS from time to time, other people relishing in making our decisions for...

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How Fabienne helped Charlotte Demand More from life with MS

How Fabienne helped Charlotte Demand More from life with MS

The World vs.MS

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Blogs

24-08-2018

6 minutes, 9 secondes

From my perspective On the morning of 5 December 2010, I fell to the floor when getting out of bed. The right side of my body no longer responded; I was paralysed on one side. I nevertheless had enough strength (the paralysis would worsen over the upcoming days) to drag myself into the living room...

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How Telma’s husband helped her Demand More from life with MS

How Telma’s husband helped her Demand More from life with MS

The World vs.MS

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Blogs

08-08-2018

4 minutes, 25 secondes

Not long ago, I was chatting to a friend and I said to her: “Sometimes, people think that a miracle happened to me to be as I am, but that’s not what happened.” Dilma knowingly replied, “People see your smile, but they didn’t see your tears and what they want is to smile when they...

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